The Perelman School of Medicine at the University of Pennsylvania
For the 2nd year in a row we've had the pleasure of being apart of a Long QT case study at . Dr. Matthew Hutchinson, Cardiologist, has taken a specific interest in Long QT and has invited us to discuss it from a very personal perspective. During this presentation we've had the opportunity to speak to actual medical students awarding them the opportunity to uncover the mysteries of Long QT and its real life effects on families. This is a very humbling and valuable experience for our family. Being able to even for a moment be on the clinical side of the table has educated my husband and I a great deal. Our participation in this case study really affirms the power of the parent voice, self advocacy and patient care as a team; including parents and professionals. We look forward to hopefully participating this upcoming October 2013 because there is always more to learn and more to share. We like to thank our friends Jamie Thorne, Mekhi Thorne, Crystal Dailey and Sid Holmes for their moral support. To speak to a room full of strangers can be intimidating but when there are familiar faces of love, it’s easy to speak from the heart.
Year #4 and we're still going strong! #ourstory #hisstory #Samadsstory
"Every year my Ol lady does a presentation with her Homeboy Dr.Hutchingson in front of an auditorium of Medical Students about Samads heart condition at the University of Penn, because he is a case study there. As u see Crystal over there on Facebook smgdh Lol!!" - written by Omar Muhammad aka Samad's daddy
